Fernanda Gomezllanos
English 110
Professor Jay Lewenstein
11 December 2019
Cancer In Young Patients: What Goes On Behind The Curtain
When I was sick, I had little days to be at home between hospital stays, but were mostly interrupted every three days. Doctor’s order was that every three days I had to go to a laboratory and get my blood drawn. The laboratory would send my result to my doctor and then he would give me a call and tell me if I came out fine or if there was a detail and needed to get fast to the hospital. So it became a routine; I still have scars on my arm from all the times I was pinched with a needle. Going to the laboratory was pretty boring. I had to get up early, which was a big buzz to me because all I wanted to do was rest. Once I got there, even though it was early, the waiting room was almost full every time. I never saw the same people. Most of them were old people. But one time I saw a little boy, he is two years old and his name is Iker. Iker was accompanied by his mom. I was so intrigued by him because I love kids and he was bald. I remember him just staring at me because I was doing faces so he would laugh. He was eating spaghetti with his hands. Weeks later my mom and Iker’s dad were talking outside the laboratory. My mom told me that Iker’s dad explained that he recognized her from the hospital and that Iker was a patient on the same floor as me. He told my mom that even though he is going through a very tough disease, Iker is a very happy little boy and loves eating. That is something that I want to highlight because whenever I was in treatment I couldn’t eat. About a month later, I was having lunch with my mom and grandma at Olive Garden. My mom went to the restroom and when she came back she told me that she saw Iker with her mom eating spaghetti. I think spaghetti is Iker’s favorite food. I have not seen him since then because I’m not a patient at the hospital anymore, but I hope that pretty kid is feeling good and healthy.
I have the pleasure to know someone who knows cancer very closely. Not herself, but someone very close to her suffered from it. Diana is the oldest child of four. Since she was a little girl, she had the most responsibilities in her home. Her parents were often out of the house. So she had to learn to cook and do other things around the house to take care of herself and her siblings. Diana is now a mother. Her daughter was diagnosed with cancer. So she and her husband reacted rapidly to what they can do to save their child's life. But her daughter is not their only child. She had to find a way to take care of her sick daughter, taking her to doctor's appointments, driving her to the hospital to get treatment, and staying with her while her husband worked. And at the same time, she had to take care of her other two kids, who are young. After all she does Diana is tired. But she had to keep going for the sake of her family. And after all she has done, finally, her daughter is fine and sickness free. I think because Diana was taught a great responsibility since she was a young girl, she is used to taking care of others in her family and the happiness of those others is her battery and strength to keep going. Her most positive qualities are that she can take anything. She can make something bad workout at the end of the product. No matter how tired she is, she will keep going. But her weaknesses are a reflection of her strengths. Because of all that she does, she is constantly tired and can get mad pretty easy. She is sensitive to comments about how she runs her unstoppable life. People tell her to calm, to slow down, but she cannot do that. Her family is everything to her. Diana is one of the many mothers who are so strong, fierce, and brave against the great battle of cancer.
Along this research, I always find myself wondering this question. Why do so many children suffer from cancer? For starters cancer is already a really bad and painful thing to go through, but as a child must be worse. Treatment is very expensive and families whose children have cancer can't afford treatment. I want to understand the process from diagnosis to end of treatment. I sympathize with what those young children are going through and what their parents are feeling. I found that there are many different types of treatment, from chemotherapy, radiation, to surgery. Children who suffer from cancer and their parents can be subject to depression or anxiety (Jie Chen 1). Cancer can be transmitted by genes or just happen out of the blue. In some cases, doctors and experts do not know why a child who all his life has been healthy can come up with cancer. If cancer genes run in your family there is no way to prevent cancer, but you can detect it on time. By detecting on time it can be less aggressive. But if cancer does not run in your family, it is important to get yearly check-ups.
The article "Music Relevance for Pediatric Cancer Patients”, by Jie Chen, Yang Liu, and many other authors. Conveys the importance of music in most children’s lives. To the advance of pediatric supportive care, it is helpful to understand those young cancer patients with cancer thoughts on music (par 3). Music therapy can be associated to alleviate children’s distress. Many positive effects can be seen from music and carry over into children’s homes to help support their families. I agree with this article. Music does help you battle whatever you are going through. I find music to be therapeutic. Music is vital in children's life. It is important to understand what those kids think about music. It is known that music therapy can help young children with what they are going through. Music has very positive effects on children's lives. The fact that music can help young kids stay away from depression or anxiety while going through a hard thing like cancer is amazing. "Broader family, social, and electronic musical interactions also promote children's resilience and "normal" development” (par 28). No matter who you are, no matter where you are. If you have music with you, you can be anything you want. I think that normalcy this article talks about is the comfort and peace music can give.
I have a close experience with cancer when I was younger. So I wanted to interview someone that I met during that time. I met Kelsey on the very first day of my treatment at the hospital. I remember how I felt like I was not supposed to be there; everything around me was new images to my brain. Before that, I have never been to a hospital, except when I was born of course. But really, never had I been a patient. Yes, I had visited family and friends, but being a patient and doing everything in a hospital room is very different. It is a different environment from what I was used to. I had to sleep in a hard not so comfortable bed, eat (only sometimes) food I didn’t like from the hospital kitchen, had to shower in the plain floor and just a curtain separating me from the toilet, but sometimes I would get a different room that did have a normal shower. The point is, I felt like a tourist in a country I did not want to be.
I had met a couple of nurses from the night before, but when I met Kelsey I knew our relationship was going to be different. It was like an instant friendship. I felt I could tell her everything. She would tell me stories about her life, and we would talk about movies longer than she was supposed to stay in my room. Every day the hospital nurses have different patients to take care of. But Kelsey changed her schedule with the other nurses so she could have me for the most days she possibly could. Every time I look back and remember Kelsey, I see her black glasses and her daily slick ponytail. She also always wore some funny big shoes that look like they are for dancing. “They are called Dansko shoes actually, and they are very very comfortable, even though they look tough and big.” Kelsey commented when I asked her about the funny shoes she wears. I did my research on them. If I had to describe them I would say they seem heavy, oddly shaped, and are not very aesthetically charming. I found that nursing professionals have a higher chance of developing musculoskeletal disorders due to daily activities. And the Dansko shoes are produced with comfort materials and supportive features that help reduce pressure points when nurses are working on their feet all day.
Kelsey has seen many patients come and go, it is part of her ritual now, but something that stands out to her is the strength the kids have. “You would not believe the things these kids go through, it is rough.” She commented. “I don’t know where they get all that. If it were me in their place, I do not know how to handle it as they do.” She said about her experience in working with kids. “Sometimes I have to wake them up after 12 to draw some blood and give them their pills, and they wake up, even though they are tired.” Kelsey added. “I don’t believe, for one second, that I made a wrong choice career. I love what I do. Coming here (hospital) every day and get the chance of changing someone’s life is extraordinary. I wouldn’t change it for the world.” She told me while talking about her career and if she would have liked being another thing other than a nurse. “It is hard getting here I’m not going to lie, but everything is worth it at the end of the day” Kelsey expressed. Every day she and other nurses go and help is a blessing. When a kid finally gets to go home, that is their purpose.
Figure 2 Child Life Playroom. Taken from (https://www.brennerchildrens.org/)
A young kid with cancer can mentally be affected by the events and experiences he is facing. They can be traumatized, and they can even block some of the things that made them suffer during their treatment. Families can suffer a big depression as well. It is important to stay positive around the child. But being sick does not mean they are sad all the time. There is little happiness everywhere around. Like Iker, the boy I met. He is so small and young, and the thing that he enjoys the most is eating. He found his little happiness in that. Other young patients experience happiness and joy by playing board games or solving puzzles. Hospitals specialized for kids usually have playrooms were they can go and enjoy some time. A volunteer can help bring them what they want if for some reason they are not feeling well. I was always one of the persons who when paying something in a store and asked about if I wanted to donate a dollar to a children's cancer foundation I said no. Because you do not know what really is to be in that position, so you do not care. You do not know anyone who is in that position, so why not save some bucks. That mentality has to change now. Kids are dying all around the world because there is not enough help. It is time to open our eyes to reality and see what is going on, even in our country. Families struggle every day. Maybe because the insurance company did not accept them, or because it does not cover certain things. Cancer is expensive. We need to start putting our little grain of sand in the world. There are many ways to help, you just need to find the right one.
Works Cited
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Chen, J., Liu, Y., Cai, Q., Liu, Y., Wang, T., Zhang, K., Wang, J., Chen, W. and Huang, H. (2019). Type D Personality Parents of Children With Leukemia Tend to Experience Anxiety. [Online] NCBI. Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4602458/ [Accessed 13 Mar. 2013].
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O'Callaghan, C., Baron, A., Barry, P. and Dun, B. (2019). Music's relevance for pediatric cancer patients: a constructivist and mosaic research approach. - PubMed - NCBI. [Online] NCBI. Available at: https://www.ncbi.nlm.nih.gov/pubmed/20422229. [Accessed 28 Apr. 2010].
Welsh, Judith T., and Todd Welsh. "Pediatric Oncology." Pediatric Emergency Medicine Reports, vol. 22, no. 4, 2017. ProQuest, https://search.proquest.com/docview/1985664592? accountid=38876.